The pediatric quality of life inventory: measuring pediatric health-related quality of life from the perspective of children and their parents

Pediatr Clin North Am. 2009 Aug;56(4):843-63. doi: 10.1016/j.pcl.2009.05.016.

Abstract

Health-related quality of life (HRQOL) has been recognized as an important outcome, some contend the most important outcome for children's health care interventions. The PedsQL Measurement Model was designed as a modular approach to measuring pediatric health-related quality of life, developed to integrate the relative merits of generic and disease-specific approaches. We suggest that part of the process of improving the quality of health care includes measuring HRQOL outcomes from the perspective of children and their parents on a routine basis, consistent with a consumer-based health care system approach.

MeSH terms

  • Arthritis
  • Asthma
  • Brain Neoplasms
  • Cerebral Palsy
  • Child
  • Diabetes Mellitus, Type 1
  • Fatigue
  • Health Status
  • Heart Diseases
  • Humans
  • Neoplasms
  • Outcome Assessment, Health Care / methods*
  • Parents*
  • Pediatrics* / standards
  • Quality of Life*
  • Rheumatic Diseases
  • Risk Assessment
  • Sensitivity and Specificity
  • Surveys and Questionnaires / standards*
  • Translations
  • United States