TABLE 2.

Client Experience of HIV Care and Quality of Life Indicators

CategoryDomainsIndicator Number and Name
Care experience

  • Service level

  • Client-provide interactions (effective bidirectional communication)

  • Dignity of care (including nondiscrimination, autonomy, confidentiality, and kindness)a

  • Privacy 

  • User-centered health system (including user voices, ease of use of the system, waiting times, choice of provider)a

1. Percentage of surveyed clients who would recommend an HIV health service as a proxy measure of their own care
Quality of lifeSymptom control and side effects2. Percentage of surveyed clients who report minimal HIV-related symptoms
Mental well-being3. Percentage of surveyed clients who report experiencing minimal mental or emotional problems in the past 2 weeks
Social support4. Percentage of surveyed clients who report feeling socially supported by family and/or friends
Stigma and discrimination 5. Percentage of surveyed clients who report experiencing minimal discrimination as a result of their HIV status
Financial burden6. Percentage of surveyed clients who experience financial hardship associated with their HIV diagnosis and/or their HIV-related treatment and care

  • ↵a Expanded domains based on World Health Organization6 and Kruk et al.8