1.1. Studies using primarily home visits for follow-up |
Aftab 202130 |
Bangladesh, India, Pakistan, DRC, Ghana, Kenya, Tanzania, Zambia Prospective cohort of 125,716 pregnant individuals | Direct maternal morbidity and mortality, stillbirth, and neonatal death | Home visits by trained workers at week 1 and between week 7 and 11 after delivery; persistence not reported. | 91% visited at least once | Study also included 3 home visits during pregnancy. |
Creanga 201631 |
Kenya Prospective cohort of 1,185 pregnant individuals | Intentions and behaviors regarding maternal and neonatal health service utilization | Home visits by trained interviewers up to week 6 after delivery; persistence not reported. | 89% | Study also included 2 home visits during pregnancy. |
Darmstadt 201032 |
Bangladesh Cluster RCT of 10,006 neonates | Neonatal illness and survival | Home visits by CHWs at days 2, 5, 8, and 28 after delivery; persistence not reported. | 73% visited at least once | Study included 2 home visits during pregnancy. CHWs attended the delivery if possible and facilitated referral if necessary. |
Surkan 201733 |
Bangladesh Prospective cohort within a cluster RCT of 59,666 pregnant individuals | Maternal morbidity and postpartum depression | Home visits by trained interviewers at months 3 and 6 after delivery; persistence not reported. | 96% with depression data at 6 months | |
Ward 200834 |
United Kingdom Prospective cohort of 6,297 individuals with a CD | CD surgical site infection | Routine home visits by community midwives (median length of follow-up: 15 days after delivery); persistence not reported. | 88% with completed follow-up records | |
1.2. Studies using primarily clinic visits for follow-up |
Srun 201335 |
Cambodia Prospective cohort of 222 individuals with a CD | CD superficial surgical site infection | Clinical assessment of wound by nurses and surgeons during inpatient stay and 2 scheduled clinic visits post-discharge at days 15 and 30 after delivery (microbiological methods used); phone follow-up by surgeons if patients didn’t return. | 86% (Day 15) and 80% (Day 30) across all methods | 9% (17/190) of those reached on day 15 were contacted by phone (on day 30: 16% (29/176)). 36% (4/11) of superficial infections were diagnosed post-discharge. |
Zejnullahu 201936 |
Kosovo Prospective cohort of 420 individuals with a CD | CD surgical site infection | Routine clinic visit (day 30) with gynecologists and additional outpatient department follow-up up to day 30 (microbiological methods used); persistence not reported. | 77% | |
1.3. Studies using in-person visits for follow-up (location not specified) |
Surveillance Monitoring for Antiretroviral Toxicities Yee 202137 |
United States Prospective dynamic cohort (recruitment ongoing) of 2,976 pregnant individuals and individuals after delivery who are living with HIV (2007–2019) | Substance use in caregivers (wider study looks at health of children and their caregivers) | In-person structured interviews conducted by trained interviewers up to week 1 and at month 12 after delivery; persistence not reported. | 98% (Week 1), 60% (Month 12) | |
2. Studies using primarily telephone calls for follow-up |
Bianco 201338 |
Italy Prospective cohort of 1,705 individuals after delivery | Postpartum infection | Telephone calls by 2 physicians (trained, not involved in patient care) at day 30 after discharge (medical records for validation); 5 attempts. | 97% | Telephone surveillance identified more infections (8.9%) than traditional infection surveillance systems (1.4%). |
Cardoso Del Monte 201039 |
Brazil Prospective cohort of 204 individuals with a CD | CD surgical site infection | Telephone calls by study investigator and trained student nurse at days 15 and 30 after delivery; 3 attempts at each time point. | 92% | |
Hacker 202240 |
United States Prospective cohort of 10,092 individuals after delivery | Hypertensive disorders | Telephone calls by a nurse or patient educator (and self-administered blood pressure measurement if cuff available) at week 1 after delivery; persistence not reported. | 59% | |
Halwani 201641 |
United States Prospective cohort of 193 individuals with a CD | CD surgical site infection | Telephone calls by study investigator at days 7, 14, and 30 after delivery; 3 attempts at each time point. | 82% interviewed at least once. 65% interviewed 3 times. | Incidence of infections detected by telephone 10% (19/193) compared to 7% (14/193) by traditional surveillance. |
Hill 202142 |
United States Prospective cohort of 631 individuals with a positive COVID-19 test during their hospital stay after delivery (individuals who tested negative were also included at 1 site) | Well-being of COVID-19 patients |
Hospital records and telephone calls after discharge by physicians and clinical nurses up to week 2 after discharge (2 calls per week; first call within 3 days after discharge); persistence not reported. | 36% reached a least once | |
Lima 201643 |
Brazil Prospective cohort of 528 individuals with a CD | CD surgical site infection | Telephone calls by trained undergraduate students up to day 15 and up to day 30 after delivery; 5 calls at each time point. | 67% contacted at least once. 30% on day 15, 63% on day 30. | |
Nguhuni 201744 |
Tanzania Prospective cohort of 316 individuals with a CD | CD surgical site infection | Telephone calls by a clinically trained investigator or nurse at days 5, 12, 28 after delivery (clinical reviews for validation); at least 2 attempts. | 87% reached at least once | 85% of enrolled women provided a telephone number. Compared to clinical reviews, sensitivity and specificity of phone interviews was 72% and 100%, respectively. |
PRAMS Salvesen von Essen 202245 |
Puerto Rico Prospective cohort of individuals with a live birth: 1,536 (Phase 1), 1,485 (Phase 2) | Maternal and infant postpartum (ill-) health and behaviors (partly Zika-related) | Telephone calls by 6 interviewers at month 3 after delivery (Phase 1) and month 9 after delivery (Phase 2); persistence not reported. | 77% (Phase 1), 83% (Phase 2) | Telephone surveys followed standard PRAMS protocol procedures. |
Swissnoso SSI surveillance system Troillet 201746 |
Switzerland Prospective cohort of 187,501 surgery patients including 32,814 individuals with a CD | Surgical site infection | Telephone calls by infection control nurses at 1 month after operation; 5 attempts. | 91% for individuals with a CD | 87% of CD surgical site infections diagnosed after discharge. |
Woodd 202147 |
Tanzania Prospective cohort of 879 individuals after delivery | Maternal postnatal infections and newborn infections | Telephone calls by research nurses (2 per hospital) at days 7 and 28 after delivery; 4 attempts over 7 days. | 90% interviewed at least once. 86% interviewed on day 28. | 3% of the initial sample had no access to a telephone. |
3.1. Studies using self-administered postal questionnaires for follow-up |
The Norwegian Mother and Child Cohort Study Magnus 201648 Bjelland 201649 |
Norway Prospective cohort of 112,908 pregnant individuals | Maternal and child health | Self-administered postal questionnaire at month 6 after delivery; persistence not reported. | 80% (Month 6) | Study also included additional questionnaires sent during pregnancy, at 18 months after delivery and later in childhood. |
NorwayProspective cohort of 20,248 pregnant individuals without pelvic pain in pregnancy | | | 85% (Month 6) | |
PRAMS Shulman 201850 Kortsmit 202251 |
United States Prospective cohort of individuals with a live birth (Annual state sample size: 1,000–3,000) | Maternal behaviors, attitudes, and experiences | Self-administered postal questionnaire with sampling taking place at months 2 to 6 after delivery; telephone follow-up for non-responders, 5 mailings and 15 call attempts. | 47%–74% (median = 61%; in 2014) | |
United States Prospective cohort of 347,363 individuals with a live birth stratified by whether infant is alive or deceased | | | 48.3% if infant is deceased, 56.2% if infant is alive | |
Williams 200752 |
United KingdomCross-sectional survey of 2,100 individuals after delivery | Perineal morbidity | Self-administered postal questionnaire at month 12; reminder after 3 weeks. | 23% | |
3.2. Studies using self-administered electronic questionnaires for follow-up |
Hirshberg 201853 |
United StatesRCT of 206 individuals after delivery with pregnancy-related hypertension | Blood pressure monitoring | Text messages with individuals responding to automated text messages sent by web-based platform up to week 2 after discharge; 2 requests for blood pressure readings per day. | 92% submitted at least 1 reading in the first 10 days postpartum | Texting reached more individuals than standard clinic visits (92% compared to 44%). |
Zhu 202154 |
ChinaProspective cohort of 674 individuals after delivery belonging to the rural-to-urban floating population | Self-efficacy, postpartum depression, and social support | Self-administered electronic questionnaire distributed via email or WeChat at weeks 6 and 12 after delivery; WeChat reminders 1 week and 1 day before data collection time points. | 81% (Week 6), 65% (Week 12) | |
4. Studies using a combination of methods for follow-up |
Baxter 202155 |
EnglandRepeated point-prevalence study (4 time points) of 1,639 individuals with a CD | CD surgical site infection | Inpatient and re-admission cases identified via electronic records. Post-discharge cases identified via telephone and text messages (1st time point: telephone; 2nd–4th time point: text messages with telephone follow-up). Program led by midwife with infection control experience. Timing of contact not reported; 3 attempts for telephone calls. | 47%–68% across all methods (1st time point: 60%, 2nd: 47%, 3rd: 68%, 4th: 60%) | Small quality improvement initiatives between time points. As accuracy of telephone numbers improved, response rates increased to 74%. |
MINA-Brazil CohortCardoso 202056Mosquera 201957 |
BrazilProspective cohort of 1,246 pregnant individuals and individuals after delivery | Growth and development of Amazonian children | Linkage to hospital records, telephone calls (up to month 3), and study visits (from month 6 on) conducted by trained fieldworkers (including research assistants and nurses) on days 30 to 45, and months 3, 6 and 12 after delivery; multiple phone calls to schedule assessment and text message reminders before clinic visit. | 64% (Month 6), 63% (Month 12) | Study also included visits during pregnancy, after delivery in hospital, and later during childhood (year 2 and planned for year 5). |
BrazilProspective cohort of 1,523 pregnant individuals and individuals after delivery | | | 63% (Day 30–45) | 3% of women did not provide valid telephone number. |
Ferraro 201658 |
ItalyProspective cohort of 3,685 individuals with a CD (4 time points) | CD surgical site infection | Routine clinic visit or telephone calls up to day 30 after delivery. Person making contact not reported; persistence not reported. | 94% across all methods and time points | 89% (129/145) of infections were diagnosed post-discharge. |
Madhi 201859 |
Panama, Dominican Republic, South Africa, MozambiqueProspective cohort of 3,243 pregnant individuals | Maternal and infant access to health care facilities | Visit to study site and, if necessary, telephone calls or home visits up to day 30. Person making contact not reported; persistence not reported. | 98% | Study also included data collection at time of delivery. |
Opøien 200760 |
NorwayProspective cohort of 326 individuals with a CD | CD surgical site infection | Wound inspection in hospital by study authors, patients instructed to monitor symptoms and contact hospital, and self-administered postal questionnaire up to day 30 after delivery; reminders sent to non-responders and telephone follow-up if necessary. | 100% | Incidence of infections detected by day 30 was 9% (29/326) compared to 2% detected before discharge. |