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PROGRAM CASE STUDY
Open Access

Adopting Data to Care to Identify and Address Gaps in Services for Children and Adolescents Living With HIV in Mozambique

Belmiro Sousa, Sergio Chiale, Hayley Bryant, Lisa Dulli and Tanya Medrano
Global Health: Science and Practice April 2024, 12(2):e2300130; https://doi.org/10.9745/GHSP-D-23-00130
Belmiro Sousa
aFHI 360, Maputo, Mozambique.
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Sergio Chiale
bCARE International, Maputo, Mozambique.
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Hayley Bryant
aFHI 360, Maputo, Mozambique.
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Lisa Dulli
cFHI 360, Durham, NC, USA.
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  • For correspondence: ldulli{at}fhi360.org
Tanya Medrano
cFHI 360, Durham, NC, USA.
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  • FIGURE 1
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    FIGURE 1

    Comparison of Data From COVida Project vs. Health Facility on Children and Adolescents Living With HIV on Antiretroviral Therapy

    Abbreviations: ART, antiretroviral therapy; C/ALHIV, children and adolescents living with HIV; HF, health facility.

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    FIGURE 2

    Viral Load Testing Results and Viral Suppression Among Children and Adolescents Living With HIV Enrolled in Services Within the 5 Districts

    Abbreviations: ART, antiretroviral therapy; C/ALHIV, children and adolescents living with HIV; VL, viral load.

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    TABLE 1.

    Challenges Identified Through the Data to Care Intervention and Corrective Actions Taken by the COVida Project

    ChallengeCorrective/Improvement Actions Taken
    Some C/ALHIV who were enrolled in the COVida project were not registered as ART patients in any of the health facilities in the 5 districts.
    • Case workers and their supervisors reviewed names in case management records, cross-checking with names on patient treatment cards, and then communicated findings to the health facilities. 

    Some HIV-positive children were registered as adults in the health facilities’ database, indicating discrepancies in children’s ages in the COVida project and the health facility databases.
    • Case workers and their supervisors cross-checked children’s age with their birth certificates and shared the correct information with the ESCALA data entry specialist based in the health facility. COVida project’s case management records were also corrected as needed.

    Some C/ALHIV enrolled in the COVida project reported that they were taking their medications as prescribed yet were registered as being lost to follow-up in the health facilities.
    • Community case management workers were provided with lists of C/ALHIV designated as lost to follow-up by the health facilities and were able to find the C/ALHIV and bring them back to the health facilities to restart ART.

    Some C/ALHIV registered by the COVida project as not being on ART were actually on ART and registered in a different health facility (to which they had transferred themselves).
    • COVida project updated its case management records to register the name of the new health facility.

    Only about half of C/ALHIV had VL data.
    • The COVida project invited ESCALA staff to train the community case management workers to educate caregivers on VL testing and to encourage them to request this service in the health facility.

    • The ESCALA project facilitated access to VL data in health facilities for COVida case managers to track children’s VL.

    Only about half of those with VL results were virally suppressed.
    • The ESCALA project, with the COVida project, trained community case workers on ART adherence to improve monitoring of ART adherence and adherence counseling.

    • Messaging on ART adherence for children and their caregivers was reinforced during home visits.

    • Abbreviations: ART, antiretroviral therapy; C/ALHIV, children and adolescents living with HIV; VL, viral load.

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    TABLE 2.

    Summary of Strategies to Address Challenges Identified During Scale-Up

    ChallengesSolutions
    Some C/ALHIV had incomplete or outdated information in the electronic patient tracking system
    • Health facilities allowed COVida staff to use patients’ physical files/records to complete pending information.

    • Timeline for D2C activities was adjusted to happen after clinical partner’s data cleaning.

    Case managers’ supervisors lacked time to conduct the D2C intervention in high volume sites
    • The COVida project allocated a full-time pediatric HIV supervisor in each district, whose salary was paid by the project, to facilitate and support the intervention and the updating of C/ALHIV data, monitor the progress of C/ALHIV, and provide specialized support for the most challenging cases.

    Some clinical partners and health facilities’ staff expressed resistance to collaborate in implementing the D2C intervention
    • After the successful pilot experience in Inhambane, the COVida project presented the D2C standard operating procedures and tool to the USAID/Mozambique mission.

    • To support the scale-up of this approach, the USAID/Mozambique Mission organized a meeting with clinical and OVC partners to promote the approach and requested that all clinical partners collaborate with OVC partners to scale it up.

    • Abbreviations: C/ALHIV, children and adolescents living with HIV; D2C, Data to Care; OVC, orphans and vulnerable children; USAID, U.S. Agency for International Development.

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Global Health: Science and Practice: 12 (2)
Global Health: Science and Practice
Vol. 12, No. 2
April 29, 2024
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Adopting Data to Care to Identify and Address Gaps in Services for Children and Adolescents Living With HIV in Mozambique
Belmiro Sousa, Sergio Chiale, Hayley Bryant, Lisa Dulli, Tanya Medrano
Global Health: Science and Practice Apr 2024, 12 (2) e2300130; DOI: 10.9745/GHSP-D-23-00130

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Adopting Data to Care to Identify and Address Gaps in Services for Children and Adolescents Living With HIV in Mozambique
Belmiro Sousa, Sergio Chiale, Hayley Bryant, Lisa Dulli, Tanya Medrano
Global Health: Science and Practice Apr 2024, 12 (2) e2300130; DOI: 10.9745/GHSP-D-23-00130
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  • Article
    • ABSTRACT
    • BACKGROUND
    • ADOPTING THE DATA TO CARE STRATEGY IN MOZAMBIQUE
    • PILOTING THE DATA TO CARE INTERVENTION
    • LESSONS LEARNED
    • CONCLUSIONS
    • Acknowledgments
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